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Beyond the Pale: Folklore, Family and the…
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Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes

by Emily Urquhart

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I would like to thank Jacaranda Books for providing me with an advanced reading copy of this book.

I'm not a big reader of non-fiction, but this one caught my attention and I had to pick it up. I found the authors voice engaging, she held my attention and interest and kept me reading. The love for her daughter really shines through, and her struggle to come to terms with her daughter's albinism and the resulting work that she now does is both inspiring, and important.

It's shocking to read how people with albinism are treated throughout the world. I was certainly unaware that these things were going on before reading this book, but since finishing the book I have seen a BBC documentary and only just tonight read about related events in the news. It's good to see that it's being talked about and awareness is spreading. It's important that people are educated and made aware of what's happening and for the victims' stories be told in order to prevent it from happening in future. ( )
  Scarlet-Aingeal | Feb 21, 2017 |
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Amazon.com Product Description (ISBN 0062389165, Hardcover)

The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.

A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in black magic, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations.

While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

(retrieved from Amazon Thu, 12 Mar 2015 18:17:19 -0400)

A journalist and folklore scholar describes her research into cultural beliefs associated with albinism after giving birth to a beautiful albino daughter.

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