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Loading... Still Aliceby Lisa Genova
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will love Sign up for LibraryThing to find out whether you'll like this book. This book takes you step-by-step into the world of an Alzheimer's patient. Because the patient is a well-published academic, we are more inclined to accept her descriptions of the process through which she is moving. The way this process is given to the reader, one can not help but feel despair at the relentlessness of this advancing disease. Memorable, frightening and compelling - "Still Alice" provides an unforgettable look at Alzheimer's disease through the first-hand account of one woman's struggle. It was hard to pick up - I didn't want to read it - but once I started it, it was impossible to put down. I wasn't sure if I would like a book with this subject matter in a novel format. However, Lisa Genova wrote a novel that could easily pass for a non-fiction true story. Her expertise in the field of Alzheimers disease is clearly evident and adds so much to the book. Alzheimers is such a terrifying disease because of the loss of your identity. This book is a must read for anyone dealing with this disease. It's extremely sad but how could it be anything else. This is a scary book, especially as I watch my mom's deteriorating cognitive abilities although she's not near the level of Alice. I found this to be a basically uplifting book in the way that Alice and her family responded to her progressive deterioration. I especially loved the last scene where Alice is working with her daughter the actress. no reviews | add a review
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“Readers…are artfully and realistically led through…a window into what to expect, highlighting the importance of allowing the person with the disease to remain a vibrant and contributing member of the community…" Peter Reed, PhD, Director of Programs, National Alzheimer's Association
“With grace and compassion, Lisa Genova writes about the enormous white emptiness created by Alzheimer’s in the mind of the still-too-young and active Alice. A kind of ominous suspense attends her gathering forgetfulness, and Genova puts us, sympathetically, right inside her plight. Somehow, too, she portrays the family’s response as a loving one, and hints at the other hopeful, helpful response that science will eventually provide.” Mopsy Kennedy, Improper Bostonian
"An intensely intimate portrait of Alzheimer's seasoned with highly accurate and useful information about this insidious and devastating disease." Dr. Rudolph E. Tanzi, co-author, Decoding Darkness: The Search for the Genetic Causes of Alzheimer's Disease
“Her (Alice's) thought patterns are so eerily like my own...amazing. It was like being in my own head and like being in hers.” James Smith, diagnosed with Alzheimer’s, age 45
“...something for the world to read.” Jeanne Lee, author of Just Love Me: My Life Turned Upside-Down By Alzheimer’s
“A laser-precise light into the lives of people with dementia and the people who love them.” Carole Mulliken, Co-Founder of DementiaUSA
"A work of pure genius. This is the book that I and many of my colleagues have anxiously awaited. The reader will journey down Dementia Road in a way that only those of us with Dementia have experienced. Until now." Charley Schneider, author of Don't Bury Me, It Ain't Over Yet
(retrieved from Amazon Fri, 24 Apr 2009 07:57:52 -0400)
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My father’s father, Grandpa Willie, did have Alzheimer’s Disease. His was not early onset as Alice’s was in the novel. His came with old age. Being on the West Coast and he on the East, I did not see the impact his illness had on him first hand like I had with my grandmother in California. I heard the stories though. The last time I saw my grandfather in the nursing home, he had no idea who I was.
Earlier this year, my husband’s uncle was diagnosed with early onset Alzheimer’s Disease. Uncle R is a war veteran, highly intelligent and was successful in his career. It has been difficult for his family, including his wife, children, mother and sister.
Alzheimer’s is hereditary. And that’s a scary thought. As terrible as this may sound, I confess to being more frightened of having that than cancer (although I worry about that too; breast cancer being a real risk factor in my life—both my grandmothers and mother having had it). The idea of losing my mind, piece by piece . . . My memories, including the most basic disappearing. And knowing it is happening. I cannot imagine how frustrating and frightening that would be not only for me but those around me.
Still Alice was not a book I sought out to read before now. It was one sent to me by the publisher for review. Even amidst all the glowing reviews, I hesitated in reading it. I commented on many blogger reviews that I wasn’t ready, that it hit too close to home. When Florinda brought up the idea of a group read-along, I penciled it in deciding I might as well give it a try.
I picked up Still Alice at lunch on Friday and barely spent any time on my computer that night as I jumped right back into reading. I only went to bed at 12:44 a.m. because I could not keep my eyes open any longer. I finished the book Saturday morning. I didn’t rush through the book on purpose with a deadline in mind. I was so involved in Alice’s story, in her family’s story, that I just wanted to keep reading.
In Lisa Genova’s novel, Dr. Alice Howland is a cognitive psychology professor at Harvard University. She has a successful career and is well-respected among her peers. She prides herself on her accomplishments and being the best teacher she can be. She is the mother of three adult children and married to a man she loves very much and who is also successful in his own career.
She loves her children. Her older two are leading successful lives. Alice worries about her youngest though who has chosen a career path that Alice has trouble understanding. She also worries that she and her husband have grown apart. They live under the same roof, but lead very independent lives. She misses their walks to work in the morning, holding hands and stopping at Jerri’s for coffee and tea.
She is extremely busy, always on the go. It is no wonder she occasionally forgets where she puts things and sometimes loses a word. Everyone does that now and then, especially when stressed or overwhelmed. In Alice’s case, there’s also the possibility of menopause setting in. Hadn’t she read that minor memory disruptions and mental confusion could be related to that?
It isn’t until she forgets how to get home one day during a run that she realizes just how serious her problem may be. Not wanting to worry her husband, she sees her doctor and later a neurologist. She never expected the diagnosis she was given: early onset Alzheimer’s Disease.
Lisa Genova’s prose is simple and easy to read even if the story she tells is one filled with sadness and pain. It is not all depressing though. While Alice’s prognosis is poor, her family is just as much a part of this book as Alice, and their lives will go on.
I wasn’t too keen on Alice at first. I immediately identified with her youngest daughter, Lydia. Alice is very opinionated and has difficulty understanding Lydia’s choice not to attend college to pursue an acting career. Alice and Lydia have a strained relationship in the beginning of the book, but as the story progresses, their relationship begins to change. My impressions of Lydia only grow more positive and I came to really care about Alice.
I could understand Alice’s husband’s initial denial and constant search for solutions that might help his wife. It couldn’t have been easy for him. The woman he loved was disappearing before his eyes. Juggling his career and a spouse who was becoming increasingly dependent would not be easy on anyone. I feel terrible for writing this, but he frustrated me at times with the choices he made, one in particular. Was he wrong? Not necessarily. He did what he thought was best for him in his situation. It is hard to know what we would do in any given circumstance without being in that situation ourselves. Still, his choices bothered me.
Alzheimer’s Disease is degenerative and there is yet no cure. There are drugs that help minimally by delaying the progression of the illness but it is still unknown how to stop it. There is DNA testing available which can detect whether a person is likely to develop Alzheimer’s, however, it is not full proof by any stretch. And then the question becomes whether you’d want to know something like that ahead of time. Lisa Genova broached this subject in the novel as well.
The author also addressed the stigma associated with Alzheimer’s. The fear and assumptions people make upon learning someone has the disease. When Alice’s colleagues learned of her diagnosis, they began to avoid her. Her family often would talk about her while she sat right there in the room instead of addressing her directly. Alice could not help but feel alienated and alone, not to mention helpless.
I felt a full range of emotions while reading this novel: fear, anger, sadness, joy, hope, helplessness, and love. The bonds of the Howland family are tested to the limit. Alice is an amazing and strong woman. I couldn’t help but think of my grandmother, grandfather, and Uncle R. as I read. My heart aches for what they must have gone through—and are going through in the case of my husband’s uncle. I hope that a cure for or at least a way to stop the progression of Alzheimer’s will be found in the near future. (