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The Diving Bell and the Butterfly by Jean-Dominique Bauby
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The Diving Bell and the Butterfly

by Jean-Dominique Bauby

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1,586662,120 (4.02)47
Recently added byprivate library, mngreer, thiagop, realbigcat, russiasaturn, lesleymc, hockley, lougheed, MsPibel
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English (60)  Portuguese (2)  French (1)  German (1)  Catalan (1)  Portuguese (Brazil) (1)  All languages (66)
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Powerful. I highly recommend this book. Author dictated this book solely by blinking one eye. A very poignant indepth look at his life from his perspective after a massive stroke. A MUST READ ( )
  lesleymc | Nov 8, 2009 |
This is a beautifully written, memoir by the editor-in-chief of the magazine, Elle. Bauby suffered a massive stroke in his 40s, leaving him unable to communicate except by blinking his left eye. Somehow, it is not a particularly sad book. It is obvious from his story that he was a man who lived "the good life" of wealth, travel, good food, and a loving family. In spite of all that he lost, his reflections are full of beautiful imagery of his past life, the day dreams that he used to manage his present situation and his hopes for the future. His thoughts seemed to seep directly into my mind, fully developed as images, without the normally required translation into written words. A tiny treasure. ( )
1 vote krazy4katz | Sep 26, 2009 |
My daughter had to read this for school so I thought I would as well. It is amazing in it's testament for the need to communicate. Jean Bauby tells his story by blinking his left eye as someone reads through the French alphabet. His recent stroke has placed him in a state where only his left eye and his mind are functioning. This is called Locked in Syndrome. Despite this disability Bauby is able to provide for us insights into his life and dreams. I found the extraordinary process of trying to write this a bit more interesting that the actual words. There are memories and anecdotes that are at times interesting, but overall the most involving of stories was that this was actually produced. Ironically or tragically he died just after this project, which makes this even more telling - perhaps the quest of communication was what was keeping him alive. ( )
  novelcommentary | Sep 13, 2009 |
Perhaps if Jean-Dominique Bauby's story of "locked-in syndrome" - a rare cerebrovascular condition in which the mind ("The Butterfly") is vibrant and wide awake, while the body ("The Diving Bell") is a slumbering mass of perpetual immobility and inertia (a very personal prison cell comprised of his own flesh and blood) - were fictive rather than so terribly true, I'd of more so savored each of his spare sentences. For each sparkling sentence is a story or a truth unto itself.

"But to keep my mind sharp, to avoid descending into resigned indifference, I maintain a level of resentment and anger, neither too much nor too little, just as a pressure cooker has a safety valve to keep it from exploding."

Chew on that lyrical gem a bit. Words to live by, even if your body, unlike Bauby's, is not permanently paralyzed.

Perhaps if this poor man, victim of a massive and usually lethal stroke at 43 that left him in a coma for two months, weren't dead right now, and hadn't died so soon after completing what could be considered the most concentrated (and certainly shortest) tome ever written, or had I not known these horrible facts while reading the book, I could say then, and only then, that I enjoyed it, the book. I greatly enjoyed the poetic, philosophic writing, the sardonic humor despite his heartfelt and unfathomable (for someone not trapped in his godawful situation) psychological suffering and loss, and even the occasional, understandable, bitter barbs of incisive wit he let loose, I liked too (i.e., an insensitive, gruff doctor asks Bauby, "Do you see double?", and Bauby, internally, replies, "Yes, I see two assholes, not one."). But how can I honestly say I enjoyed this story? I suppose I did enjoy it - the storytelling, that is - but I likewise didn't enjoy poor Jean-Dominique Bauby's tragic story. A story that just as easily could be anyone's story at any time, should Fate or God or The Cosmos or Whatever determines to do to you what it determined so abruptly and brutally - fatally - for Bauby.

It's so much easier to read something deliciously depressing like The Road because it's obviously made up stuff no matter how realistic the author breathes whatever bleak and ruined life into the characters and settings and scenarios he's created, but The Diving Bell And The Butterfly is about as in-your-face, depressingly real as it gets. And it's not depressing necessarily because of anything Bauby said (or how he said it) - though I will wholeheartedly say that Bauby said as much about life - and about death and suffering and how to deal with the latter two as optimistically as possible - I believe, in barely 100 pages (and did so only by blinking his left eye! - you just try communicating and writing anything - let alone what borders on the meaning of life - just by blinking your left eye!), as any existentialist, 19th century Russian masterpiece could say even though it pushed or exceeded a thousand pages.

Bauby indelibly tapped into the primal human horror of having complete consciousness, and yet being so ill-equipped to communicate that consciousness - to connect it - to another human being as to take humanity's innate dread of loneliness and abandonment to levels perhaps previously unrealized in fiction or non-fiction. I've a dear daughter "locked-in" her own isolated interior world of autism, and knowing Bauby through his brief book, helps me understand and recognize more clearly that there's probably a lot more going on beneath the surface with my mostly non-verbal, uncommunicative daughter than I ever realized.

The book, quite simply, is beautifully sad. Hopeful, and yet despairing. Inspiring, yes, but not "joyous," as the dumb publishing blurb on the back, falsely claims. Movie tie-in marketing no comprendo's.

I don't recommend The Diving Bell And The Butterfly, but I think everyone should read it. ( )
13 vote EnriqueFreeque | Aug 28, 2009 |
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Series (with order)
Canonical Title
Original publication date
People/Characters
Important places
Important events
Awards and honors
Epigraph
Dedication
For my children, Théophile and Céleste . . .

And my deepest gratitude to Clause Mendibil,
whose all-important contribution to these
pages will become clear as my story unfolds.
First words
Through the frayed curtain at my window, a wan glow announces the break of day.
Quotations
Last words
Disambiguation notice
Publisher's editors
Blurbers
Original publication date1997-05-13
People/CharactersJean-Dominique Bauby
DedicationFor my children, Théophile and Céleste . . .

And my deepest gratitude to Clause Mendibil,
whose all-important contribution to these
pages will become clear as my story unfolds.
First wordsThrough the frayed curtain at my window, a wan glow announces the break of day.
BlurbersNuland, Sherwin B., M.D., Ozick, Cynthia, Weil, Andrew, M.D., Wiesel, Elie, White, Edmund, Prose, Francine (show all 7)
DescriptionComa. Een briljante geest raakt gevangen in een totaal verlamd lichaam. Alleen al het denken aan een dergelijke situatie is benauwend. Leven in een onbeweeglijk duikerpak, zonder hoop op herstel... Het overkomt Jean-Dominiqu... (show all)
Book description
Coma. Een briljante geest raakt gevangen in een totaal verlamd lichaam. Alleen al het denken aan een dergelijke situatie is benauwend. Leven in een onbeweeglijk duikerpak, zonder hoop op herstel...
Het overkomt Jean-Dominique Bauby, succesvol journalist en hoofdredacteur van het blad E//e. Op 8 december 1995, 43 jaar oud, raakt hij na een beroerte in een diep coma.
Eind januari 1996 komt hij weer bij bewustzijn. Al zijn motorische functies zijn gestoord; hij kan niet meer bewegen, eten, spreken en zelfs ademhalen is zonder hulp niet mogelijk. De medische wereld heeft er een uitdrukking voor: het 'locked-tn syndrom' ofwel 'opgesloten in jezelf. ,~
Bauby heeft nog 'geluk1: hij is in staat zijn linkerooglid te bewegen. En zijn gedachten zijn glashelder...
Met behulp van dat ooglid en een speciaal alfabet weet Bauby zijn gedachten (vlinders noemt hij ze zelf) te dicteren, letter voor letter. Woorden rijgen zich aaneen tot zinnen, tot hoofdstukken en uiteindelijk tot een boek. Een verbluffend boek, benauwend maar ook optimistisch, humoristisch en spiritueel.
Voor Jean-Dominique Bauby was elk woord kostbaar. Zijn verhaal is als een schatkist, maar het is ook zijn testament. Hij stierf een paar dagen na het verschijnen van zijn boek, in maart 1997, met de wetenschap dat toonaangevende critici Le scaphandre et Ie papilion als een meesterwerk beschouwden.

Amazon.com (ISBN 0375401156, Hardcover)

We've all got our idiosyncrasies when it comes to writing--a special chair we have to sit in, a certain kind of yellow paper we absolutely must use. To create this tremendously affecting memoir, Jean-Dominique Bauby used the only tool available to him--his left eye--with which he blinked out its short chapters, letter by letter. Two years ago, Bauby, then the 43-year-old editor-in-chief of Elle France, suffered a rare stroke to the brain stem; only his left eye and brain escaped damage. Rather than accept his "locked in" situation as a kind of death, Bauby ignited a fire of the imagination under himself and lived his last days--he died two days after the French publication of this slim volume--spiritually unfettered. In these pages Bauby journeys to exotic places he has and has not been, serving himself delectable gourmet meals along the way (surprise: everything's ripe and nothing burns). In the simplest of terms he describes how it feels to see reflected in a window "the head of a man who seemed to have emerged from a vat of formaldehyde."

(retrieved from Amazon Fri, 24 Apr 2009 07:57:53 -0400)

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