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The Diving Bell and the Butterfly by Jean-Dominique Bauby
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The Diving-Bell and the Butterfly

by Jean-Dominique Bauby

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1,656672,055 (4.01)51

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Book description
Coma. Een briljante geest raakt gevangen in een totaal verlamd lichaam. Alleen al het denken aan een dergelijke situatie is benauwend. Leven in een onbeweeglijk duikerpak, zonder hoop op herstel...
Het overkomt Jean-Dominique Bauby, succesvol journalist en hoofdredacteur van het blad E//e. Op 8 december 1995, 43 jaar oud, raakt hij na een beroerte in een diep coma.
Eind januari 1996 komt hij weer bij bewustzijn. Al zijn motorische functies zijn gestoord; hij kan niet meer bewegen, eten, spreken en zelfs ademhalen is zonder hulp niet mogelijk. De medische wereld heeft er een uitdrukking voor: het 'locked-tn syndrom' ofwel 'opgesloten in jezelf. ,~
Bauby heeft nog 'geluk1: hij is in staat zijn linkerooglid te bewegen. En zijn gedachten zijn glashelder...
Met behulp van dat ooglid en een speciaal alfabet weet Bauby zijn gedachten (vlinders noemt hij ze zelf) te dicteren, letter voor letter. Woorden rijgen zich aaneen tot zinnen, tot hoofdstukken en uiteindelijk tot een boek. Een verbluffend boek, benauwend maar ook optimistisch, humoristisch en spiritueel.
Voor Jean-Dominique Bauby was elk woord kostbaar. Zijn verhaal is als een schatkist, maar het is ook zijn testament. Hij stierf een paar dagen na het verschijnen van zijn boek, in maart 1997, met de wetenschap dat toonaangevende critici Le scaphandre et Ie papilion als een meesterwerk beschouwden.

Book descriptions

Amazon.com Amazon.com Review (ISBN 0375701214, Paperback)

We've all got our idiosyncrasies when it comes to writing--a special chair we have to sit in, a certain kind of yellow paper we absolutely must use. To create this tremendously affecting memoir, Jean-Dominique Bauby used the only tool available to him--his left eye--with which he blinked out its short chapters, letter by letter. Two years ago, Bauby, then the 43-year-old editor-in-chief of Elle France, suffered a rare stroke to the brain stem; only his left eye and brain escaped damage. Rather than accept his "locked in" situation as a kind of death, Bauby ignited a fire of the imagination under himself and lived his last days--he died two days after the French publication of this slim volume--spiritually unfettered. In these pages Bauby journeys to exotic places he has and has not been, serving himself delectable gourmet meals along the way (surprise: everything's ripe and nothing burns). In the simplest of terms he describes how it feels to see reflected in a window "the head of a man who seemed to have emerged from a vat of formaldehyde."

Amazon.com Product Description (ISBN 0007139845, Paperback)

The diary of Jean-Dominique Bauby who, with his left eyelid (the only surviving muscle after a massive stroke) dictated a remarkable book about his experiences locked inside his body. A masterpiece and a bestseller in France, it is now a major motion picture directed by Julian Schnabel. On 8 December 1995, Jean-Dominique Bauby suffered a massive stroke and slipped into a coma. When he regained consciousness three weeks later, the only muscle left functioning was in his left eyelid although his mind remained as active and alert as it had ever been. He spent most of 1996 writing this book, letter by letter, blinking as an alphabet was repeatedly read out to him. 'The Diving-Bell and the Butterfly' was published in France on Thursday 6th March 1997. It was immediately hailed as a masterpiece. And then, three days later, he died. 'The Diving-Bell and the Butterfly', which records Bauby's lonely existence, is probably the most remarkable book about the triumph of the human spirit, the ability to invent a life for oneself in the most appalling of circumstances, that you will ever read. It has now been made into a captivating film, directed by Julian Schnabel and starring Mathieu Amalric, which was the winner of the award for Best Director at Cannes and nominated for the Palm d'Or.

Amazon.com Product Description (ISBN 0375401156, Hardcover)

In 1995, Jean-Dominique Bauby was the editor-in-chief of French Elle, the father of two young childen, a 44-year-old man known and loved for his wit, his style, and his impassioned approach to life. By the end of the year he was also the victim of a rare kind of stroke to the brainstem. After 20 days in a coma, Bauby awoke into a body which had all but stopped working: only his left eye functioned, allowing him to see and, by blinking it, to make clear that his mind was unimpaired. Almost miraculously, he was soon able to express himself in the richest detail: dictating a word at a time, blinking to select each letter as the alphabet was recited to him slowly, over and over again. In the same way, he was able eventually to compose this extraordinary book.

By turns wistful, mischievous, angry, and witty, Bauby bears witness to his determination to live as fully in his mind as he had been able to do in his body. He explains the joy, and deep sadness, of seeing his children and of hearing his aged father's voice on the phone. In magical sequences, he imagines traveling to other places and times and of lying next to the woman he loves. Fed only intravenously, he imagines preparing and tasting the full flavor of delectable dishes. Again and again he returns to an "inexhaustible reservoir of sensations," keeping in touch with himself and the life around him.

Jean-Dominique Bauby died two days after the French publication of The Diving Bell and the Butterfly.

This book is a lasting testament to his life.

Amazon.com Product Description (ISBN 0307389251, Paperback)

In December 1995, Jean-Dominique Bauby, the 43-year-old editor of French Elle, suffered a massive stroke that left him permanently paralyzed, a victim of “locked in syndrome.” Once known for his gregariousness and wit, Bauby now finds himself imprisoned in an inert body, able to communicate only by blinking his left eye. The miracle is that in doing so he was able to compose this stunningly eloquent memoir.

In a voice that is by turns wistful and mischievous, angry and sardonic, Bauby gives us a celebration of the liberating power of consciousness: what it is like to spend a day with his children, to imagine lying in bed beside his wife, to conjure up the flavor of delectable meals even as he is fed through at tube. Most of all, this triumphant book lets us witness an indomitable spirit and share in the pure joy of its own survival.

(retrieved from Amazon Tue, 05 Jan 2010 12:01:03 -0500)

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