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Measure of the Heart: A Father's Alzheimer's, A Daughter's Return by Mary Ellen Geist
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Measure of the Heart: A Father's Alzheimer's, A Daughter's…

by Mary Ellen Geist

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Hope. Grief. Frustration. Exhaustion. Delight. Denial. Mary Ellen Geist touches on all these emotions and many more in her account of dealing with her father's struggle with Alzheimer's disease. She put her career and life on hold and returned to her childhood home in Michigan to help her parents. In the Foreword Dr. Oliver Sacks points out that Geist “has written eloquently of a whole family living with dementia.” This is indeed the whole family's story. Geist gently guides readers into the labyrinth of daily life in the household.

The book is emotional but also full of information. Stories of other caregivers are woven into the narrative. Facts and figures about the disease and caregivers (71% are women) are provided. Particular attention is devoted to caregivers. All too often caregivers take on too much and compromise their own health.

One chapter that surprised me was about the hospital experience. Geist's father (Woody) was admitted for orthopedic surgery, a double knee replacement. He was in the hospital for two weeks. The hospital personnel were not prepared to deal with a Alzheimer's patient; I was shocked. This chapter, “Hospital Hell and Healing,” should be read by any caregiver who will have an Alzheimer's patient in the hospital. Geist offers a list of suggestions that will be helpful.

Despite a cascading loss of mental acuity, Woody never lost his musical abilities. He remembered the words and melodies to songs learned long ago. Music remained in tact in Woody's brain. As Sacks notes, “he seemed to be completely present, to come together and bypass his dementia (though as soon as the singing ended, the dementia was evident again).”

Anyone caring for a person with dementia will find information and validation in this book. There are resources listed and a bibliography. Most importantly Geist brings her journalist's instincts to bear on this incredibly difficult and stressful situation. She honestly discusses personal difficulties and offers concrete suggestions for coping. ( )
nmulvany | Oct 29, 2008 |  
This was a truly heartbreaking read. Author Mary Ellen Geist is very candid with her experiences as a caretaker to her father suffering from Alzheimer's. She discusses how he deteriorates and how she and her family deal with each and every nuance of the disease. Her ability to put her feelings into words was the best part of the book for me. I could really feel what she was going through. I think any caretaker of an Alzheimer's patient would be able to relate to this book. One thing that I would have liked to have seen was an epilogue of sorts telling the reader what she and her father are doing now. The entire book was spent pulling the readers into her family's life and the end just stops with nothing to tell us how the story ends. Is she back to her "normal" life? Did her father finally have to go to a group home? The book doesn't tell us. ( )
peppergrape | Oct 18, 2008 |  
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Amazon.com Product Description (ISBN 0446580929, Hardcover)

Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition.

The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others.

Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.

(retrieved from Amazon Fri, 24 Apr 2009 07:58:10 -0400)

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