My Story: A Photographic Essay on Life with Multiple Sclerosis

by Amelia Davis

On This Page

Description

In a series of dramatic essays and photographs by the renowned San Francisco-based photographer Amelia Davis, My Story is an evocative description of what it is like to live with multiple sclerosis (MS), a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs in this highly engaging, beautifully illustrated book poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of show more various ethnicities, and socio-economic backgrounds who share the challenge of living with MS. Some, like Am show less

Tags

Recommendations

Member Reviews

9 reviews
This book was well written, giving the reader the insight as to what occurs not only with MS patients, but their caregivers as well. Given the fact that my daughter's teacher has a husband who has MS, it has given me a whole new respect for her as to her role as caregiver. A definite must read!!
This review was written for LibraryThing Member Giveaways.
This book is beautiful and poignant. I really enjoyed the diversity in stories. From families, singles, different faiths, spiritualities, sexes, races, and sexualities. This book did a phenomenal job of exploring the whole host of backgrounds that are effective by MS. I especially enjoyed the extra effort to tell the “families” story. In most of the stories, someone closely involved in support or care of the storyteller was also included. The pictures were marvelous. I enjoyed the artistic simplicity where she managed to fully capture the essence of everyone in the book. I am donating this book to my library for the multitudes of local people who can find inspiration in this warm and touching look at the human side of MS.
This review was written for LibraryThing Member Giveaways.
When researching My Story by Amelia Davis I found this quote:
"...[offers] encouragement and inspiration for anyone coming to terms with what it means to be a person with [MS]." -- Consumer Connections, Winter 2004

I think this is the perfect description of this book. My Story: A Photographic Essay on Life with Multiple Sclerosis uses photographs along with short essays giving us a glimpse into the lives of 32 people living with MS. Contributors share the story of their life and how Multiple Sclerosis has changed them as well as the things they discovered that stay the same no matter what life throws at you. Photographs by Amelia Davis accompany each essay showing us the faces behind MS.

For every essay written by a person with Multiple show more Sclerosis in this book there is a companion essay written by their caregiver. Behind every person with a chronic illness be it MS or something else there is always someone and often a lot of someones caring for those people. If not physically then mentally and emotionally. not for a second can the plight of the individuals with the illness be downplayed, but those surrounding and supporting those people must not be forgotten, My Story does a wonderful job of including these people while at the same time not taking away from the individuals they are caring for. show less
This review was written for LibraryThing Member Giveaways.
Beautiful pictures offset uplifting and encouraging text. I would definately recommend this to anyone who knows someone with MS, becuase it also illustrates how the disease affects those around the patient, and gives examples of what they can do for their loved ones.
This review was written for LibraryThing Member Giveaways.
This collection of stories are from amazing people who are living life to the fullest despite having multiple sclerosis. The majority of stories appear to be from economically well-off people. Even so, these inspirational stories describe lives containing almost unbelievable willpower and happiness.
This review was written for LibraryThing Member Giveaways.
I have not had timeyet to read this book cover to cover. I have, however, flipped through, reading bits and pieces of several of the profiles, and based on my sampling, I think this is the book I have been looking for since my own diagnosis in 2006. It's hard to explain to people -- including myself, and especially my family -- just what a diagnosis of MS means, because it means so many different things to different people. By profiling so many different people, with varying approaches to life, and varying ability levels, this book presents a broader picture than most of the ones I have previously seen.

I anticipate expanding this review once I"ve read the book more thoroughly.
This review was written for LibraryThing Member Giveaways.
Great example of the uniqueness of people and the many different positive approaches that can be taken when living with a debilitating disease. This book is full of many powerful stories with many inspirational people from all walks of life.
This review was written for LibraryThing Member Giveaways.

Members

Recently Added By

Author Information

8+ Works 64 Members

Common Knowledge

Original publication date
2004
Dedication
For Bonita
My caregiver, My strength. Thank you.
First words
Foreword:
People often think that a diagnosis of multiple sclerosis is the end of their ability to live a normal life.
Preface:
Five years ago, just two months before my thirtieth birthday I was diagnosed with multiple sclerosis (MS).
Last words
(Click to show. Warning: May contain spoilers.)It's courage that I've witnessed and it's passion; passion to love and live no matter what, to make the best of what's been given and ride that invincible train. All the way to the end.

Classifications

Genres
Nonfiction, Biography & Memoir, General Nonfiction, Health & Wellness, Art & Design
DDC/MDS
362.196Society, government, & cultureSocial problems and social servicesSocial WelfarePeople with physical illnessesServices to people with specific conditionsDiseases
LCC
RC377 .D377MedicineInternal medicineInternal medicineNeurosciences. Biological psychiatry. NeuropsychiatryNeurology. Diseases of the nervous system
BISAC

Statistics

Members
22
Popularity
1,192,112
Reviews
9
Rating
½ (4.43)
Languages
English
Media
Paper, Ebook
ISBNs
3