Marie Killilea (1913–1991)

I read this book a long time ago, when I was a kid, and it made quite an impression on me. Younger people today likely had some disabled people in their schools, or workplaces. It's taken pretty much for granted today that disabled people are given accommodations to integrate with 'normal' society and many of them are able to lead productive lives.

However, the 1950's were several decades before the Americans with Disabilities Act and other laws which mandated accessibility for disabled show more people. Awareness and compassion for disabilities was different, back then people like Karen were more or less considered "broken" or "defective" by many people, and that was the average attitude. To even be a parent of a disabled child was no easy thing, and this book illustrates the struggle of living in the 1950's trying to raise, and do your best, for a child with cerebral palsy.

This is a very good biography, and is a very worthwhile read for the insight it offers into a different time and attitude, and the fight to overcome prejudices and misconceptions about disabled people. show less

Every time I read my copy, I'm blown away by Karen's story. She overcame so much to achieve a productive life after her parents were told to leave her in an institution and forget they ever had her. The family as a whole provided support and hope for thousands of other families struggling with CP and without the Killileas, development of CP devices and surgeries would have been held back for many decades. Even without all of that, you will fall in love with the entire family. I wish I knew show more where they all were now! show less

This is one of those classic books that deserves a 5 star review. For the inspiring story that it is, for the superb writing, the humor, grit, honesty and the history behind it as well. Marie Killilea tells the story of her daughter Karen, who was born with cerebral palsy in the early 1940's, a time when PT and OT services were virtually non-existent. The story includes anecdotes, conversations, struggles, and also a parallel story of how Mrs. Killilea helped found the National United show more Cerebral Palsy Foundation. Delightful and inspiring. This was my second reading of the book. I'm reading the sequel now for the first time! show less

The story of a girl born in the 1940's with cerebral palsy. Written by her mother, the story opens with the parents' expectant joy in their new baby, slowly being replaced by uneasiness and anxiety as she never moves. Does not wave her arms, crawl, babble, etc. Soon they receive a diagnosis, and an idea of what it will mean: their daughter may never walk, talk, be able to care for herself. Karen's family did not tamely accept that verdict. Relentlessly they took her to doctors and show more specialists, searching for something that could be done. Their family worked into their daily life physical therapy routines for Karen, and at the same time taught her to be independent and self-reliant in spirit, even as her physical handicap made every little task a struggle. Her family's indomitable faith and determination are very inspiring. She made progress beyond what any of the doctors thought could be achieved, and her parents became active in organizing for and helping other families with CP children. More than just an inspiring story, this is a warm tale of family life, the writing flows easily and is full of life and humor. It's such a wonderful book to read.

from the DogEar Diary show less